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After three years, the Marulu FASD Prevention Project wrapped up on 30 June 2017. Key activities for the final year (July 2016 to June 2017) included the completion of seven FASD Awareness videos developed by Paul Bell from Feral Films in consultation with community groups across Australia Telethon Kids Institute‚Äôs research team and Communication and Engagement Team. The videos were developed to raise awareness of the effects of alcohol use in pregnancy and the world leading research Telethon Kids is conducting with communities.  
In addition, data from 2016 AUDIT-C records has been analysed. Two draft papers have been developed so that the team can share the community Knowledge, Attitudes and Practices (KAP) and AUDIT-C results more widely. These papers will be ready for submission in early 2018.


As always, we thank the Fitzroy Valley communities for allowing the team to conduct this important work. The support of community members, community leaders and local organisations has enabled us to document the strengths and needs of the community, as well as build an evidence base for FASD prevention.

Investigators

  • Dr James Fitzpatrick1
  • Maureen Carter2
  • June Oscar3
  • Dr Rochelle Watkins1
  • Professor Carol Bower1
  • Glenn Pearson1
  • Professor Jonathan Carapetis1
  • Professor Mike Daube4
  • Kaashifah Bruce1

1Telethon Kids Institute, Perth
2Nindilingarri Cultural Health Services, Fitzroy Crossing
3Marninwarntikura Fitzroy Women's Resource Centre, Fitzroy Crossing
4McCusker Centre for Action on Alcohol and Youth, Curtin University

Project staff

  • Kaashifah Bruce
  • Dr Martyn Symons
  • Dr Tracy Reibel

External collaborators

  • Professor Mike Daube, McCusker Centre for Action on Alcohol and Youth, Curtin University, Australia
  • Maureen Carter, Nindilingarri Cultural Health Services, Fitzroy Crossing, Australia
  • June Oscar, Marninwarntikura Fitzroy Women's Resource Centre, Fitzroy Crossing, Australia
  • Gary Kirby, Michelle Gray, WA Mental Health Commission, Australia

Project funders

  • Government of Western Australia, Department of Health
  • Government of Western Australia, Department of Aboriginal Affairs
Video

The Marulu Strategy - Dr James Fitzpatrick

Video

Marulu Prevention strategy - Dr James Fitzpatrick TedX Talk

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Making FASD history in the Fitzroy Valley

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Dr James Fitzpatrick's poetry

  • Nindilingarri Cultural Health Services, Fitzroy Crossing, Australia
  • Marninwarntikura Fitzroy Women's Resource Centre, Fitzroy Crossing, Australia

On International FASD Day 9 September 2016 people in Fitzroy Crossing joined together to promote the 'no alcohol in pregnancy' message.

The purpose of the 'Make FASD History' videos is to raise awareness of FASD and it's impact on the lives of children, their families and communities. The videos will also be used to promote the work of Telethon Kids Institute researchers and their Marulu Strategy partners Nindilingarri Cultural Health Services and Marninwarntikura Women's Resource Centre.

We acknowledge the families and children who appear in the videos and thank them for sharing their stories. These are very personal and emotive journeys.

The videos were funded by the Western Australian Government Department of Health.

We also acknowledge the film maker, Paul Bell, and his production team at Feral Films.

Video

What is FASD?

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Marulu FASD Prevention Strategy at WA's Fitzroy Crossing

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Children with FASD - Alex's Story

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Children with FASD - Lillie's Story

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Children with FASD - Sharyn's Story

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Researcher Dr James Fitzpatrick on this "Invisible Disability"

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FASD's Impact on Remote Western Australian Communities